A narrative care journey map designed as a “choose your own adventure,” showing decision points for patients and physicians.

Designing the allergy patient
journey for better care

information design – ethnology – service design

Allergic rhinitis patient
journey research & design

Date
2023

Client
– Stallergenes Greer

Role
– information design
– ethnology
– service design

 

In 2023, I collaborated with Stallergenes, a leader in curative allergy treatments, on a cross-European research project mapping the patient journey of individuals with allergic rhinitis.

Allergy is now the fourth most common disease worldwide, after cancer, cardiovascular disease, and HIV/AIDS. According to the World Health Organization, one in two people will suffer from an allergy within the next few years, making this study both urgent and highly relevant.

A narrative care journey map designed as a “choose your own adventure,” showing decision points for patients and physicians.

Pre-interview homework assignments, helping patients reflect on their care experiences in advance.

Working alongside ethnologist Léa Ahmed, we conducted a qualitative study across France, Germany, and Italy. This included:

  • 105 patients with diverse backgrounds.

  • 21 healthcare professionals across specialties.

  • Semi-structured interviews (up to two hours each, online).

  • Pre-interview homework assignments, helping patients reflect on their care experiences in advance.

Personas and verbatims grounding the study in real-life experiences.Personas and verbatims grounding the study in real-life experiences.

The resulting report shed light on:

  • Key milestones of the care and life journey.

  • Tension points and emotional dynamics.

  • Healthcare professional practices and perceptions.

  • Barriers to accessing allergen immunotherapy (AIT).

  • “Moments of truth” shaping patient experiences.

  • Personas and verbatims to ground insights in lived realities.

Emotional curve illustrating patients’ psychological highs and lows throughout their allergic rhinitis care journey.

Beyond conducting interviews and structuring insights, I also took on the challenge of translating complex notions into impactful visuals. I designed the care journey as if it were a “choose your own adventure” story, where each branch revealed the decision points faced by patients and doctors. This narrative visualization made the invisible visible: it exposed moments where time is lost, the turning points in medical decision-making, and the alternative routes patients may encounter.

In addition, I created an emotional curve that traces the psychological states patients experience throughout their care journey, highlighting peaks of hope and valleys of uncertainty. This tool not only visualized what patients go through, but also provided concrete guidance on how to better support them at each stage.

A narrative care journey map designed as a “choose your own adventure,” showing decision points for patients and physicians.

By blending research with design, I transformed raw insights into tangible, intuitive maps, visual frameworks that spark understanding, empathy, and concrete action.

The findings were later presented at EAACI 2024, where three scientific posters showcased the work, ensuring recognition within the international allergy research community.

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